Clare and Edward

Age at interview: 68
Brief Outline:

Clare’s husband gradually noticed problems with her ability to remember details. She continues to lead a happy and fulfilling life and has devised coping strategies, but it can be very frustrating.

Background:

Clare (68) and Edward are married with two grown-up children. Edward is a retired scientist and Clare is a retired languages teacher.

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Clare retired from work due to back and leg pain. A few years later she discovered this was nerve pain and Clare has been taking painkillers ever since. Clare recalls how her memory loss was a gradual process and so she is unable to pinpoint when it started. She describes how she began to notice that she kept asking questions about things she felt she should have known, and that she became annoyed with this.

Clare feels her memory loss may be related to the medication she takes, Amnesia is listed as a possible side-effect. Clare makes clear that she currently feels fairly reliant on these painkillers and so coming off the medication is not an option she would consider at this point. She is expecting to have surgery soon for her back problem, and hopes she may be able to reduce the medication she needs, which in turn may improve her memory.

Officially Clare has not had any diagnosis relating to her memory loss but does attend a memory loss clinic every six months to be monitored.  She describes how although her memory loss as a ‘huge inconvenience’ she feels it is nothing more serious than that. Clare’s memory loss is short-term memory so she is still capable of driving, cooking and teaching languages.

Clare has developed certain strategies to manage her memory loss. She explains how she has a timetabled week and notes what may be considered minor things in a diary to remind her of what she has done. She describes how she and Edward have to be fairly disciplined in putting things away in the correct place, otherwise she believes she would lose them.

Clare describes herself as a positive and optimistic person but explains how the memory loss does get her down sometimes and describes feeling ‘darned wretched’ occasionally. When she feels like this she will often listen to the radio as a form of escapism. Clare is open to advice and happy to try new strategies or treatments. She advises that others who experience memory loss should stay positive and not let it get them down.

Trying to keep things in the right place makes life easier for Clare.

Trying to keep things in the right place makes life easier for Clare.

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I mean everybody forgets where they put things. I tend to be fairly conditioned in that respect, and I try and always put things back in the same place, because I don’t stand a cat in hell’s chance of remembering otherwise. So, you know, I hope that – and Edward does as well. So, we do try and be quite disciplined about where things go. I mean, at the moment we’re in a complete state of chaos because we’re decorating the sitting room. So that’s not making life any easier. But it’s all right, because I know that things have got to be in a certain area. And so far, I haven’t lost the chair I normally sit in, so we’re okay [laughs].

Clare remembers the feeling but not the details.

Clare remembers the feeling but not the details.

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I had a conversation with, now was it [son] or [daughter-in-law] last night? I can’t remember.  And I can’t remember the details of the conversation. All I remember was being very happy talking to my son or daughter-in-law. But I can’t remember which one it was, and, you know, I can’t even remember the gist of the conversation, except that it would be general family things. And, and came away from the phone saying, “It’s good to hear your children are happy.”

So that’s the sort of detail I’ve, I’m left with. It’s not a lot, really.

Clare sometimes finds it embarrassing when her memory lets her down.

Clare sometimes finds it embarrassing when her memory lets her down.

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If I had to use an adjective, I would just call it irritating. It isn’t trivial to me, it’s irritating.

Yes, sure.

It’s also an embarrassment at times. You know, in conversation with people you suddenly, you realise that, “Oh, heck, I think we’ve had this conversation before” but I can’t remember. Or we’ve been somewhere. I’m a member of a decorative and fine arts society, and I go along with a friend and at the end of it we have a cup of coffee, and I come home, and I can’t remember to tell [Edward] what it’s all about. It’s very, very annoying. I have to look at the programme and say, “Oh, yes, that’s right. It was.” That’s, you know, it, it impinges on your communicating with people, really, because if it’s not coming smoothly you tend to shut up. And I don’t want to do that. They might, but I don’t [laughs].