Jackie and Gary
Gary, Jackie’s husband, self-funded care from age 66.
Gary retired at age 56 after a series of strokes caused by a rare syndrome. He received disability allowance which has now changed to Personal Independence Payment (PIP). As Jackie receives her state pension, she is not entitled to Carer’s Allowance.
Jackie and Gary first paid for care when Jackie went away on a long-planned holiday with her sister. They paid for a carer to visit once each day to help with medication and prepare meals. Jackie mostly cares for Gary herself but his condition is progressive and she is thinking ahead to when more care will be needed. As they live in a first-floor flat, there are steep stairs down to the garden. Jackie is looking for help to carry out adaptations to the house and garden access. Gary’s abilities fluctuate day to day so Jackie is constantly monitoring his condition to help and support him in his daily activities. Jackie wants a follow-up needs assessment so that they can get the right services for Gary.
Jackie feels that it is not easy to find out about allowances or any help they might be entitled to. Because Gary was only 56 when he had to give up work, he was awarded Disability Living Allowance and they are now in the process of changing to Personal Independence Payment because Gary has reached state pension age. Jackie and Gary also receive a discount on their council tax. They had needs and financial assessments soon after Gary’s diagnosis and they know that they have capital and income well above the threshold so have to pay for their own care. Jackie feels it is unfair when they have worked hard all their lives.
Jackie attends a local carer support group which she has found really helpful. The group told her about Attendance Allowance and council tax discount and has also helped her to apply for support. Jackie has also found help at Citizens Advice, Age UK and the Alzheimer’s Society. She feels it is important to access as much information as you can to ensure you get the support you are entitled to. Jackie and Gary also recommend approaching occupational benevolent societies and guilds. These are charitable organisations associated with your career, for example, Gary received a small grant from the Guild of Jewellers to pay for a short break.