Messages from grandparents of a child or children on the autistic spectrum
We asked grandparents what messages they would give to other grandparents of children on the autism, spectrum, or to health professionals.
Some of the messages were very similar. They wanted to let other grandparents know that there was light at the end of the tunnel and that things did get better. In their experience, time helped, both in accepting ‘the unexpected’ and in finding the right forms of support.
For health professionals, the main message was that a greater understanding of and awareness about autism spectrum disorders was needed. They called for more open and sensitive communication. Even if the news wasn’t always positive, it could always be communicated in an empathetic way.
“Nobody said a single positive thing about him.”
Janet feels frustrated at the lack of awareness of autism among some health professionals;…
Helen would like health professionals to be more empathetic with parents, and not focus solely on…
Jan says be straightforward, dont mess people about.
Jan would like health professionals to take a social model approach to autism and not treat the…
“It’s nothing like as bad as you think it’s going to be.”
There is light at the end of the tunnel, its a different light from the one you were expecting.
Sally says accept that you cant make everything right and respect the children for their…
Janets message is to give your grandchildren love and support and just be positive.
Helen feels strongly that the system needs to be challenged by parents and grandparents.
Dorothy wants to let other grandparents know that the principles behind Applied Behavioural Analysis (ABA) work.
Rebeccah stresses the importance of remaining optimistic.