Dementia carers: links and resources
Alzheimer's Society alzheimers.org.uk Alzheimers Society is the leading UK care and research charity for people with dementia, their families and carers. They have excellent helpline...
Who made this Carers of people with dementia resource?
Suzanne Ii
Conducted and analysed the interviews and wrote the summaries for the 2022-2024 update. Suzanne was awarded her PhD in Addiction Sciences from King’s College London in 2016. She is a Senior Qualitative Researcher with the Medical Sociology & Health Experiences Research Group (MS&HERG), University of Oxford.
Sasha Lewis-Jackson
Sasha was an Ann McPherson Pre-doctoral Fellow and continues her work as a Research Assistant with MS&HERG at the University of Oxford. She is pursuing a PhD at the University of Edinburgh.
Clive Baldwin
Conducted the original interviews for the site published in 2005. Since qualifying as a social worker he has worked in community/voluntary sector development. Awarded his PhD by the University of Sheffield in 2000, he is now Professor of Social Work St. Thomas University in Canada.
Rachel Miller
Analysed the interviews and wrote most of the summaries for the original site published in 2005. She was for 26 years a GP principal & trainer. After early retirement, she obtained an MSc at the London School of Hygiene & Tropical Medicine. Part of the Strategy Group, Health Experiences Research Group since its formation.
Advisory Panel 2022-2024 update
Polly Sykes, Senior Lecturer in Social Work, University of York
Debbie Harris, Founder of Autumna
John Hammond, Operations and Development Manager at Brighton & Hove LGBT Switchboard
Shadreck Mwale, Senior Lecturer in Sociology of Health and Illness, University of West London
Emily Kenward, Founder & Chief Executive Officer, Time to Talk Befriending
Peter Clark, Public representative
Manisha Ahya, Public representative
Helen Graham, Public representative
Jennifer Bostock, Public representative
Acknowledgements
Thank you to the organisations and participants who helped us with this research. We would also like to thank everyone who provided feedback, advice and support to complete the update to this module.
Funded by
This project is funded by the National Institute for Health and Care Research (NIHR) under its Three Schools’ Dementia Research Programme (Funder Reference Number: 102645/3SDRP/UYLL-DP08). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
Grant holders:
Suzanne Ii (Co-Principal Investigator), Senior Qualitative Researcher, MS&HERG, Nuffield Department of Primary Care Health Sciences, University of Oxford
Lyndsay Lindley (Co-Principal Investigator), Research Associate, Social Policy Research Unit, School for Business and Society, University of York
Sue Ziebland, Professor of Medical Sociology and Co-Director of MS&HERG, MS&HERG, Nuffield Department of Primary Care Health Sciences, University of Oxford
Yvonne Birks, Professor and Associate Dean for Research for the Faculty of Social Sciences, Social Policy Research Unit, School for Business and Society, University of York
Kate Baxter, Senior Research Fellow, Social Policy Research Unit, School for Business and Society, University of York
Rachael Jennings, Senior Social Worker, North Yorkshire County Council
Ahmad Krayem, Public representative
Adam Barnett, Chief Executive Officer, The Dipex Charity
Advisory Panel for the original site published in 2005
Carol Green
Alzheimer’s Society QRD consumer monitors
Clive Evers
Director of Information, Alzheimer’s Society
Dr Judy Shakespeare
GP and Senior Clinical Fellow, DPHC Oxford
Dr Julian Hughes
Old Age Psychiatrist, Newcastle General Hospital
Dr Nori Graham
Emeritus Consultant in Old Age Psychiatry, Royal Free Hospital, London, Vice President of the Alzheimer’s Society (and Alzheimer’s Disease International) and former Chairman of the Alzheimer’s Society
Meg Gilpin
Alzheimer’s Society QRD consumer monitors
Professor Robin Jacoby
Old Age Psychiatrist, University of Oxford
Professor Tony Hope
The Oxford Centre for Ethics & Communication in Health Care Practice (ETHOX)
Rachel Miller
Strategy Group member, Health Experiences Research Group.
Sandra Bemrose
Alzheimer’s Society QRD consumer monitors
Sue Ziebland
Research Director, Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
Tricia O’Leary
Manager, The Botley Alzheimer’s Home, Vale House
Sophie Behrman
Honorary Clinical Research Fellow, Department of Psychiatry, University of Oxford
Maureen Cundell
Memory Services Nurse, Oxford AHSN Dementia Clinical Network
Acknowledgements
Clive Baldwin conducted all of the original interviews as part of a joint project with ETHOX. Many thanks to Penny Garner from ‘SPECAL’ & Tessa Guttridge from the ‘Clive Project’ & all the health professionals and participants who helped us with this research.
Original project funded by:
Alzheimer’s Society
Department of Health
ETHOX
Omega Foundation
Grant holders:
Tony Hope
Robin Jacoby
Julian Hughes
Sue Ziebland
