Causes

There is no known cause for autism, despite the large amount of research that aims to find out. We asked parents what they thought caused autism and there was a wide range of responses.

Kirsten talks about the various factors that could have contributed to her son’s autism.

Age at interview 34

Gender Female

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Some parents said they had no idea about cause at all and others said they did not care; their emphasis was on helping their children. As one mother said:

“Me personally? I have got no idea. I have got no idea at all. All I can say is that all my children are very individual. I just see Sam as my son and don’t see him as anything else. I know he has got lots of disabilities but I don’t see him as a disabled child.”

Vikki thinks her son is who he is and does not want to think about cause or blame.

Age at interview 40

Gender Male

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Another mother said:

“Well I realised very quickly after I had the diagnosis for Joe, I didn’t care what caused it. I didn’t care at all. All I cared about was how was I going to get through the next day? How was he going to be the most he could be? And I thought he is clever he is not going to waste it”.

For other parents, understanding cause was important.

Jeanine would like to know what causes autism.

Age at interview 46

Gender Female

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Genetics

Many parents talked about genetic causes and described how their children were on the autism spectrum as a result of a ‘genetic clash’ or how they could identify other family members who had ‘spectrumy traits’. Some parents were on the spectrum themselves or felt that one or other of their parents were on the spectrum. One mother said,

“I don’t know how much of this is in me or not, but I mean I know that I hate being in groups of people or going to parties with people I don’t know and all the rest”.

Tracy thinks autism is caused by genes and chromosomes that don’t mix.

Age at interview 40

Gender Female

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Mary-Anne has noticed consistent traits in herself and other family members and thinks it is a…

Age at interview 32

Gender Female

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Karen thinks there is a genetic component to autism and her daughter is aspie through and through.

Age at interview 39

Gender Female

Neurology

A few parents linked autism to the working of the brain and talked about ‘miswiring’.

Ciaran thinks autism is to do with pathways in the brain which are not communicating.

Age at interview 53

Gender Male

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MMR vaccination

A couple of parents felt very strongly that their children’s autism had been caused by the Measles Mumps and Rubella vaccination.

Mike describes why he thinks the MMR injection caused his son’s autism.

Age at interview 55

Gender Male

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Most parents mentioned the MMR vaccination and a few thought that it could have been a trigger that had somehow triggered their children’s autism. Several parents had not let their children have the vaccination, or had separate vaccinations, so they dismissed it as a factor. There is no evidence that the MMR vaccination causes autism. For more information on experiences about the MMR vaccination see Immunisation.

Contemporary life

A few parents talked about how they thought autism was a more visible condition now because of the pace of contemporary life.

Liz thinks that there is too much disorganisation, choice and stimuli these days.

Age at interview 45

Gender Female

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Carolann thinks eccentricity used to be praised but now everyone is expected to conform.

Gender Female

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Most parents talked about a combination of possible factors and things which may have triggered their children’s autism. In addition to the above, other factors discussed included the environment, allergies, difficult birth and mercury.

Dealing with professionals

Having a child on the autism spectrum can involve a lot of appointments with different health professionals over time. Parents see health professionals during the...

Factors that have helped

Parents talked about the kind of things that made their lives easier. Support groups and respite care are discussed elsewhere (see 'Support groups' and 'Respite...