Some of the people we spoke to had opted to have private healthcare instead of, or on top of care from the NHS. This section covers: Reasons for opting for private healthcare Experiences of private healthcare Paying for private healthcare Reasons for opting for private healthcare One of the main reasons we heard for ‘going […]

This page covers: What an immediate needs annuity is, Setting up an immediate needs annuity, Pros and cons of immediate needs annuities. Tish Hanifan, Joint Chair of the Society of Later Life Advisers talks about immediate needs annuities. Gender Male View profile View transcript One of the big problems with paying care fees is that […]

This page covers: How people gathered information to help their appeals, Reasons why people appealed, Organisations that can help. The care system can be baffling. Many people find themselves in situations they have never experienced or even thought about before. People told us that although they started out knowing nothing about care and funding, they […]

We have used some terms that may not be familiar. There are also some terms that people use quite regularly but in different ways. This page explains what we mean by: A self-funder Adult social care A carer or family carer A paid careworker A care home What is a self-funder? A self-funder is a […]

Everyone faced difficulties and suffering at some point. Apart from an HIV diagnosis and illness, the kinds of problems people tried to cope with included: Relationship breakdowns and death of loved ones Loneliness and isolation Lack of housing Violence such as bullying, emotional abuse and war Lack of work Threat of deportation to country of […]

The financial cost of having acne was not a big concern for most people we spoke to. However, having to treat and cover up acne for years did have financial impacts for some. Costs associated with having acne included: prescription costs for those who had to pay cost of shop bought products (including face washes, […]

Adults and children can access NHS specialist gender identity services free of charge. However, the waiting lists at these services may mean a long wait before a person is seen by a specialist. Similarly, cuts to funding and long waiting times for mental health services have made mental health support on the NHS limited. For […]

This page is about: Financial insecurity with systemic vasculitis The financial impact of systemic vasculitis on couples and families Financial security and making ends meet with systemic vasculitis Meeting extra costs of systemic vasculitis treatment Financial insecurity with systemic vasculitis Among those who spoke to us about money matters, Holly and Marie were seriously affected […]

This section explores how people’s ongoing Long Covid symptoms have affected their family’s financial situation. This topic is split into the following areas: Impact on work Changes to family circumstances Attending appointments and paying for private treatment Long Covid has significantly impacted people’s ability to work. For parents with Long Covid, this was because of […]

People we spoke to offered advice and messages to healthcare professionals and other organisations on support around living with MND, including suggestions around care, as well as support for carers. This section includes: Living with MND Caregiving Living with MND People living with MND described a variety of experiences of care and support. Individuals highlighted the […]