Carers of people with a mental health problem often find that life doesn’t turn out the way they had expected or dreamt about. Because of the needs and demands of caring, there are things carers don’t do, or do differently. For instance, some people work less, give up work or take early retirement. Others delay […]
Many people we spoke with had been drivers before their injury, and sometimes injuries were caused by road accidents. The effects of injuries meant that people were often unable to drive, either for a period of time or for the foreseeable future. Not being able to drive could be frustrating as people viewed driving as […]
When we spoke to people, and at the time of writing (September 2022), there were no evidence-based or approved Long Covid drug treatments available. People told us about their Long Covid symptoms and what medicines and supplements they had taken in the hope of improving their symptoms or getting rid of them completely. This page covers: […]
This page covers: Being referred to specialist NHS services Using private health care to access specialists Further investigations that people would like for Long Covid Read more about people’s experiences of Long Covid clinics. Being referred to specialist NHS services Several people told us about being referred by their GP to have symptoms investigated by […]
After someone dies many practical matters must be sorted out, and friends and family can be a great help. After Stephen’s wife died he found it very helpful to have his brother in the house, who told others what had happened and who, with the help of friends, “managed everything”. Stephen appreciated help with practical […]
We asked young people with Long Covid and parents caring for young people with Long Covid about the emotional impact it has had on their lives. Some of these parents also have Long Covid themselves. In this section we cover: Not feeling like yourself Anxiety and the impact of isolation Feeling different from your friends […]
This section covers people’s experiences of seeking professional support, including: Information and support after pre-symptomatic genetic testing Having tests and monitoring for possible symptoms Having counselling and emotional support Information and support after pre-symptomatic genetic testing People we spoke to had different experiences of support after receiving a positive presymptomatic genetic test result. People often felt […]
This section features: Lasting powers of attorney Advance decisions There are legal agreements that can be put in place to make sure your future decisions are made according to your wishes. Lasting Powers of Attorney means appointing one or more person that you trust to make decisions on your behalf. An advance decision is a […]
People with a diagnosis of dementia may be eligible for some benefits or discounts. There are certain criteria you will have to meet, for example, age limits. Some benefits including Attendance Allowance are not means tested. This means if you are eligible, you will receive this allowance no matter how much you have in savings […]
This page covers: Reasons why people may move to another care home Care home costs and how long they can be afforded Balancing the benefits and risks of a move Several people said they were told that once someone is living in residential care, it is risky for them to move to a new care […]
