Stuart
{media 108517} Stuart is a self advocate and shares his story of navigating unreliable support with his professional commitments and identity
Rosie gave up her accounting career in the city to start a family. Little did she know that her second born child would have severe, complex special needs and require 24/7 support.
Life changed, as hospitals became a way of life. Navigating multiple diagnosis, becoming a google expert to learning a whole new world, even a new language as her son could not speak.
Having one child in mainstream school and the second entered the world of SEND, the paperwork and challenges were vastly different. From an early stage the parent blaming was obvious. But eventually professionals realised, as a parent, I knew my child best, they soon learnt that I was indeed the expert.
As we approached adulthood for my son, I sought the Court of Protection Deputyship, this was quickly granted and allowed me to make decisions for my son’s health and welfare, finance and property. There was no question as to the severity of my son’s difficulties for life.
But upon entering adult social support services, we hit the most harrowing broken system that only focused on funding and not need.
{media 108517} Stuart is a self advocate and shares his story of navigating unreliable support with his professional commitments and identity
{media 108519} Denise is a parent carer for her daughter who has a diagnosis of Dravet Syndrome and learning disabilities. Denise shares her experiences of...