Profiles

Here, you can find any of the interviews on this site.

John Z

John, age 71, is a retired divisional fire commander. He is white British, married, with one adult child.

  • Background

    John’s wife experienced symptoms of MS for many years before receiving a diagnosis in 1984. The illness progressed steadily and she has needed full time nursing home care since 2003....

  • Age at interview 71
  • Sex/Gender Male
  • Mike

    Mike's partner was diagnosed with relapsing-remitting MS in 2009. She has frequent relapses, which more or less immobilise her. Mike cares for her full-time, with some help from paid carers, but sees himself as her partner, rather than her carer'.

  • Background

    Mike, age 51, is a hotel barman/porter, but is currently unemployed. He is white British, married, with no children.

  • Age at interview 51
  • Sex/Gender Male
  • Dave

    Dave's wife was diagnosed with relapsing-remitting MS in the early 1980s, having experienced symptoms for some time before then. She now is in the secondary progressive stage and Dave cares for her full-time at home. For him, planning is the key to managing MS and its effects on daily life.

  • Background

    Dave, age 73, is a retired telecoms technical officer. He is white British, married with two adult children.

  • Age at interview 73
  • Sex/Gender Male
  • Ian

    Ian's wife was diagnosed with MS in 1996, at the age of 42. They have both been disappointed with the care she has received in the NHS and Ian feels strongly that MS research and treatment is underfunded. They both try to maintain a positive attitude and to keep life as normal as possible.

  • Background

    Ian, age 57, works as a financial advisor. He is white British, married, with two adult children.

  • Age at interview 57
  • Sex/Gender Male
  • Patience

    Patience's husband already had MS when she met him. He proposed to her on their first meeting and they married a couple of years later. Although he is now profoundly disabled, Patience is determined to create an effective care partnership with social services so that he can remain at home.

  • Background

    Patience, age 44, is a teaching assistant in a nursery school. She is African/Ghanaian, married, with no children.

  • Age at interview 44
  • Sex/Gender Female
  • Paul Y

    Paul's wife was diagnosed with primary progressive MS in 2001. The main effects have been on her walking. They divide domestic tasks between them and have installed aids to mobility in the house. Despite his own health problems, Paul is optimistic, taking each day as it comes and not reflecting too deeply on what might go wrong.

  • Background

    Paul, age 76, is a retired accountant. He is white English, married, with one adult child.

  • Age at interview 76
  • Sex/Gender Male
  • Tony

    Tony's wife was diagnosed with relapsing remitting MS in 1991. Her condition had little impact on Tony's life at first but the symptoms gradually progressed in ways that have been life-changing. His wife is now completely dependent on him and the caring services which he co-ordinates.

  • Background

    Tony, age 72, is a retired RAF officer. He is white British, married, with two adult children.

  • Age at interview 72
  • Sex/Gender Male
  • Chez

    Chez's husband was diagnosed with MS in 1986, just a few months before they were married. He was 28 and Chez was 18. Despite all the challenges they have faced, and continue to face, Chez talks very positively about their life together.

  • Background

    Chez, age 42, is a housewife and full-time carer. She is white British, married with two children.

  • Age at interview 42
  • Sex/Gender Female
  • Mully

    She met Charles in 1990, four years after he had been diagnosed with MS. They soon married and moved to the countryside, where they have lived happily ever since, despite progressive disability.

  • Background

    Mully, age 63, is an accountant and charity fundraiser. She is white German, married, with no children.

  • Age at interview 63
  • Sex/Gender Female
  • Eric

    Eric's wife was diagnosed with MS in 1996, though she first had symptoms thirty years before then. Her illness has progressed quite markedly since 2002 and Eric now looks after her full-time at home, with twice-daily help from paid carers.

  • Background

    Eric, age 65, is a retired driving instructor. He is white British, married, with two children.

  • Age at interview 65
  • Sex/Gender Male