Profiles

Here, you can find any of the interviews on this site.

Nicola

Her mum was diagnosed with MS when Nicola was a young teenager. They lived together through Nicola's teenage years. They live in separate towns now and see each other about once a month.

  • Background

    Nicola is 32 and works in the NHS as a psychotherapist. She is white British and lives with her partner. They have no children.

  • Age at interview 32
  • Sex/Gender Female
  • Anita

    Anita's mum was diagnosed with MS when Anita was about 11 years old. Anita spent most of her teenage years and young adulthood as her mum's primary carer. She feels that this experience has had lasting consequences for her, both negative and positive.

  • Background

    Anita, age 37, works as a human resources manager. She is white British, engaged to her partner and has no children.

  • Age at interview 37
  • Sex/Gender Female
  • Carole

    Carole spent her teenage years as the main carer for her mum, who had a rapidly advancing primary progressive MS. They were years of secrecy and isolation in which no one talked about the situation. Carole now has secondary progressive MS herself and is much more open about talking about it with her own teenage son.

  • Background

    Carole, age 53, is a road safety officer. She is white British, divorced, with one child.

  • Age at interview 53
  • Sex/Gender Female
  • Ray & Sarah

    Sarah's mum has MS and from an early age Sarah took on caring responsibilities. Along with caring she is also an advocate for younger carers, providing help and support in her local area. Ray's wife was diagnosed with relapsing-remitting MS in 1980, before the birth of their daughter, Sarah. The progress of the illness has been slow, but with some severe relapses. Ray and Sarah both feel that MS has made them closer as a family.

  • Background

    Sarah is 17; white British, and studies Health and Social care at college. Ray, age 57, is a retired labourer. He is white British, married, with one child.

  • Age at interview 17
  • Sex/Gender Female