FBH test
They were given helpful counselling and information to understand their results. They also found...
Sex Male
So you went along for a blood test yourself? Father 'Yeah, after. After she got the test, then I had the test to see whether wed both got the blood type basically. And then you got a letter telling you the results, or a phone call? Father 'Yeah, we - no. It was like, let me think now. The first like duration, we found, we came in on Tueday and then they said that, you know, they'd do - what was it? My blood test would, would be in two weeks time. So, so two weeks time I phoned up and they said that I'd got the wrong blood type. And then after that we had the, taking the blood from the baby. So that's another week, you know. So that sort of duration. So it was obviously like over a three week period. So when you went for the counselling and, knowing that you were a carrier, what did they tell you about the condition? Father 'They gave us a leaflet and I think it was quite informative really, do you know? And the leaflet was sufficient, basically, saying that, you know, basically if weve both got the - just this 1 in 4 chance that we, the baby got both our genes then it will be bad. And, you know, I did some Internet research and things like that. I think we did understand more once I got the test as well. Theres a particular website on the UCL university, and that's very very informative, because that's, I think that's the most informative bits really, do you know? It's sort of really, you know, saying, 'If you've got this type, this type, this type, this type. I think that's the best website that I found, you know, if you've got a certain condition between two people. That's the APoGI website? Father 'Yeah, the APoGI one, yeah'. Yes, because presumably it must have been an issue for you that you had a beta and an E variant... Father'Yeah. ...and trying to work out what that means? Father'Yeah, because I mean we thought, 'Well, one a beta, then I've got a haemoglobin E,' then thought, 'God, you know, how unlucky is that?' you know. I thought, you know, because I haven't got beta, I thought I'd got away with it. But then it turns out that I've got this haemoglobin E malarkey. But that website is very good, really. But I mean all the results - and you can read as much as you want - but I think our philosophy is, 'The bottom line - what is the bottom line, really?' And the bottom line is, you know, weve just got to hope the baby don't have our, both our blood type really. And I think that, you know, we can read as much as we want - I mean we've done some reading, but theres no point in reading any more, do you know what I mean? Because you've just got to wait for the results and just, you know, if it happens, it happens. Footnote APoGI (Accessible Publishing of Genetic Information) website is at www.chime.ucl.ac.uk/APoGI/ and has leaflets explaining different gene variants and their implications for couples www.chime.ucl.ac.uk/APoGI/data/html/hb/couples/menu.htm